Hi-VisUK will continue the investment by our sister project, In Good Hands, to build the capacity of Sunderland and North Durham Royal Society for the Blind to become a dual sensory service for their members and local older people in Sunderland and north County Durham.

Their volunteers and staff are being supported with training in deafblind awareness and how to use our identification tool. This will enable them to identify older people with the condition and provide appropriate support.

Older people identified as having a dual sensory loss will be supported by the Society’s volunteers and where appropriate by HiVisUK staff to ensure they get the appropriate response from other local service providers.

This is one of our unique capacity building models that Hi-VisUK will promote across the country.

Our OCN Level 2 course in Acquired Communications Disorders continues to show no signs of a decrease in interest. Care providers tell us there is nothing like this training anywhere else and that it is filling a huge gap in their understanding, confidence and skills – especially when combined with our highly practical and concise Hi-VisUK deafblindness training.

The partnership between SCIE and SCENE Enterprises CIC continues to thrive. Using our Hi-VisUK OCN Level 3 Specialist Deafblind Assessor course, participants have the option of an open course in London or closed courses exclusively for organisations and delivered on their site.  Workforce leads in the adult care sector from across the country continue to show interest in this unique course. Feedback has been extremely positive and further courses are being promoted via SCIEs website.

October 1st is Older People’s Day in England. Hi-VisUK will be organising its unique friendly “Talk and TryTM” sessions in care settings. The aim is to support the Full of Life principle by talking with elderly residents who whilst not recognised as deafblind, are found to have problems with both senses. At our sessions they can learn about aids and support that can help them continue with activities and interests.

Typically around 20 elderly residents will enjoy tea and cakes and the chance to talk with Hi-VisUK staff. They will try a range of low cost, easy to see and use equipment that help with daily tasks. For example, equipment to help safely pour a hot drink reducing the risk of scalding; a reading guide to make reading a newspaper, a book or a letter more easy; high colour contrast non-slip mats to aid food preparation in the kitchen, and big print magazines and TV guides.

For residents whose hearing has deteriorated significantly, our staff find a quiet corner during the “talk and try” sessions for one-to-one conversations and to make the most of any residual hearing.

Hi-VisUK is a highly ambitious charity that, amongst other aims, is working to increase the number of older people with dual sensory loss or deafblindness requesting and receiving a specialist deafblind assessment. This is no easy task and yet it is the most vital step.

Trying to reach older people with age acquired deafblindness is a significant challenge despite the numbers. The vast majority of older people likely to have this devastating condition, those aged 50 years and above, do not see themselves as deafblind. Department of Health (DH) describes this in its Care Act policy guidance (2014) when it acknowledges “many people do not define themselves as either deafblind or having dual sensory loss.”

There are several issues and challenges in recognising deafblindness in older people. For example there are older people receiving social service care who are not identified as deafblind. DH explains: “this could be because an assessment was carried out when only one sense was affected or because both senses have deteriorated since the care package (including residential care) has started.” Other impairments including those that are often associated with ageing “may mask the deafblindness.”

This presents a nationwide picture where age-acquired deafblindness really is a Cinderella condition. This despite it currently affecting an estimated 600,000 older people. Government estimates 40/100,000 people have the condition in this country but this is likely to be closer to 572/100,000 according to one research report (Emerson, E, SENSE 2010). By 2035 the numbers of older people with deafblindness are set to rise by 60% within main population trends as people live longer lives (CeDR 2010, ONS 2012).